Become a Data Donor

🎯 Purpose:
To invite individuals with genetic test results, rare eye conditions, or related medical records to contribute valuable data that can help advance research and treatment.

👥 Who Should Join:
- Patients diagnosed with rare eye diseases
- Family members or caregivers of affected individuals
- People who have undergone genetic testing
- Individuals seeking interpretation or clarity about their diagnosis
 
🔍 Why Your Data Matters:
Every data point—whether it's a genetic mutation, a symptom history, or a medical report—helps researchers better understand rare diseases and develop targeted therapies.
Your contribution could lead to the next breakthrough in treatment or diagnosis.

🔐 Privacy & Consent:
- All data is anonymized and securely stored.
- Participation is fully voluntary and follows a 3-level consent structure:

1. Internal analysis only (non-identifiable use)
   2. Research access by approved institutions
   3. Partner access for clinical or therapeutic matching (opt-in only)
    
   📝 How to Contribute:
   Please fill out the form below and upload any relevant files.

Form Includes:
- Basic demographics (age, gender, country)
- Diagnosis name (if known)
- Age of onset / symptom history
- Upload (optional): genetic test results, diagnosis report
- Digital consent agreement